Attitudes toward disease and prognosis disclosure and decision making for terminally ill patients in Japan, based on a nationwide random sampling survey of the general population and medical practitioners.

Mitsunori Miyashita, Shuji Hashimoto, Masako Kawa, Yasuo Shima, Hiromi Kawagoe, Tsuneto Hase, Yae Shinjo, Keiichi Suemasu

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

OBJECTIVE: Employing a nationwide cross-sectional survey, we investigated the Japanese general population's attitudes toward disease and prognosis disclosure and related factors. Furthermore, we investigated Japanese medical practitioners' attitudes toward disease and prognosis disclosure for patients and decision making. METHODS: A nationwide anonymous questionnaire survey was conducted. A total of 5000 individuals were randomly sampled from the general population and 3104 physicians and 6059 nurses were randomly sampled in Japan. RESULTS: Finally, 2422 people from the general population (response rate, 48%), 1577 physicians (51%), and 3361 nurses (56%) returned questionnaires. Among the general population, 73% of participants answered that they "want to know" about their disease and prognosis when in an incurable disease state. Ninety percent desired direct disclosure and 8% disclosure through their family. However, few medical practitioners answered "patient himself" (physician 3%, nurses 4%) as the person whom they would primarily notify about the disease and prognosis when in charge of a patient with an incurable disease. On the other hand, physicians answered "family" most frequently (59%), whereas nurses most commonly responded, "depends on patient's condition" (63%). SIGNIFICANCE OF RESEARCH: Several detailed analyses of factors associated with prognosis disclosure were conducted. Japanese physicians need to carefully communicate with the patients individually about whether direct disclosure or disclosure primarily to the family is preferred.

Original languageEnglish
Pages (from-to)389-398
Number of pages10
JournalPalliative & supportive care
Volume4
Issue number4
Publication statusPublished - 01-01-2006
Externally publishedYes

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Terminally Ill
Disclosure
Decision Making
Japan
Population
Nurses
Physicians
Family Physicians
Surveys and Questionnaires
Statistical Factor Analysis
Cross-Sectional Studies
Research

All Science Journal Classification (ASJC) codes

  • Nursing(all)
  • Clinical Psychology
  • Psychiatry and Mental health

Cite this

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title = "Attitudes toward disease and prognosis disclosure and decision making for terminally ill patients in Japan, based on a nationwide random sampling survey of the general population and medical practitioners.",
abstract = "OBJECTIVE: Employing a nationwide cross-sectional survey, we investigated the Japanese general population's attitudes toward disease and prognosis disclosure and related factors. Furthermore, we investigated Japanese medical practitioners' attitudes toward disease and prognosis disclosure for patients and decision making. METHODS: A nationwide anonymous questionnaire survey was conducted. A total of 5000 individuals were randomly sampled from the general population and 3104 physicians and 6059 nurses were randomly sampled in Japan. RESULTS: Finally, 2422 people from the general population (response rate, 48{\%}), 1577 physicians (51{\%}), and 3361 nurses (56{\%}) returned questionnaires. Among the general population, 73{\%} of participants answered that they {"}want to know{"} about their disease and prognosis when in an incurable disease state. Ninety percent desired direct disclosure and 8{\%} disclosure through their family. However, few medical practitioners answered {"}patient himself{"} (physician 3{\%}, nurses 4{\%}) as the person whom they would primarily notify about the disease and prognosis when in charge of a patient with an incurable disease. On the other hand, physicians answered {"}family{"} most frequently (59{\%}), whereas nurses most commonly responded, {"}depends on patient's condition{"} (63{\%}). SIGNIFICANCE OF RESEARCH: Several detailed analyses of factors associated with prognosis disclosure were conducted. Japanese physicians need to carefully communicate with the patients individually about whether direct disclosure or disclosure primarily to the family is preferred.",
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Attitudes toward disease and prognosis disclosure and decision making for terminally ill patients in Japan, based on a nationwide random sampling survey of the general population and medical practitioners. / Miyashita, Mitsunori; Hashimoto, Shuji; Kawa, Masako; Shima, Yasuo; Kawagoe, Hiromi; Hase, Tsuneto; Shinjo, Yae; Suemasu, Keiichi.

In: Palliative & supportive care, Vol. 4, No. 4, 01.01.2006, p. 389-398.

Research output: Contribution to journalArticle

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AU - Miyashita, Mitsunori

AU - Hashimoto, Shuji

AU - Kawa, Masako

AU - Shima, Yasuo

AU - Kawagoe, Hiromi

AU - Hase, Tsuneto

AU - Shinjo, Yae

AU - Suemasu, Keiichi

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Y1 - 2006/1/1

N2 - OBJECTIVE: Employing a nationwide cross-sectional survey, we investigated the Japanese general population's attitudes toward disease and prognosis disclosure and related factors. Furthermore, we investigated Japanese medical practitioners' attitudes toward disease and prognosis disclosure for patients and decision making. METHODS: A nationwide anonymous questionnaire survey was conducted. A total of 5000 individuals were randomly sampled from the general population and 3104 physicians and 6059 nurses were randomly sampled in Japan. RESULTS: Finally, 2422 people from the general population (response rate, 48%), 1577 physicians (51%), and 3361 nurses (56%) returned questionnaires. Among the general population, 73% of participants answered that they "want to know" about their disease and prognosis when in an incurable disease state. Ninety percent desired direct disclosure and 8% disclosure through their family. However, few medical practitioners answered "patient himself" (physician 3%, nurses 4%) as the person whom they would primarily notify about the disease and prognosis when in charge of a patient with an incurable disease. On the other hand, physicians answered "family" most frequently (59%), whereas nurses most commonly responded, "depends on patient's condition" (63%). SIGNIFICANCE OF RESEARCH: Several detailed analyses of factors associated with prognosis disclosure were conducted. Japanese physicians need to carefully communicate with the patients individually about whether direct disclosure or disclosure primarily to the family is preferred.

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